The Orphadata platform provides the scientific community with comprehensive, high-quality datasets related to rare diseases and orphan drugs, in a reusable and ...
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Orphanet carries out a systematic survey of literature in order to estimate the prevalence and incidence of rare diseases. This study aims to collect new data ...
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16.05.2022 · Background: Orphan drugs are used for the diagnosis, prevention and treatment of rare diseases that, in the European Union, are defined as ...
05.09.2022 · Rare diseases are associated with difficulties in addressing unmet medical needs, lack of access to treatment, high prices, ...
22.12.2022 · One of the main barriers to conducting clinical trials in the setting of orphan drugs for rare diseases is the recruitment of patients. To ...
09.04.2021 · The triad of a presacral mass, sacral agenesis and an anorectal anomaly constitutes the rare Currarino syndrome (CS), which is caused by ...
28.12.2020 · Hence, the aim of this study was to assess the level of knowledge about RDs among dentists at a university hospital (DUs) compared to dentists ...
Description: Orphanet is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients ...
In book: 2011 Report on the State of the Art of Rare Disease Activities in Europe of the European Union Committee of Experts on Rare Diseases (pp.7, 20, 25, ...
These reports include Findings on the Worst Forms of Child Labor, as required by the Trade and Development Act of 2000; List of Goods Produced by Child Labor or.